So i’ve been ‘living’ with ME/CFS for nearly 5 years now; I’m mostly housebound and heavily dependent on family for even simple things.
During these years though, and in spite of increasing cognitive impairment, in general my clarity of thought has rocketed! I don’t know why or what is causing this (I have a theory) but it is as though I feel myself becoming more intelligent & observant as the time has gone by.
I’m at a point now where it is difficult to mentally suppress the pain in my body, and cracks are beginning to show - cognitive impairment is worsening and i have very little patience any more.
Writing can be a difficult task, so I try to record my ideas/philosophies on a tape recorder. If I didn’t do this I may already be in the grips of madness already. It acts as the only outlet I have for my intellect; I have no friends any more despite previously having a very busy social life.
BUT…
In a way I’m happier now than I have been at any poinnt since before I got sick. In fact its not that simple: it is like I am unhappy for myself when I think of my situation/future, but most of the time I spend thinking about the world and world affairs.
Along the way it seems I lost my human need to care what others think of me/my appearance/my tastes etc…
And this, in turn, has seemingly led to a feeling of “cultural liberation”, i guess.
Additionally, I no longer fear death or pains caused by trauma (eg. a punch to the head!)
To summarise (if i can lol) I think I should perhaps be concerned of the distance I am putting between myself and other people, but I am not. I’m aware that I’m distancing myself from a world I don’t like and that I see as deeply unjust and moronic, but for the first time in years I have self-esteem.
Should I not be embracing all of this in the way that I am?
Has anyone here ever been in a similar position?
If I seek psychiatric help, would the problem likely worsen being in someone else’s hands? Would I lose my newly acquired ‘fearlessness’ and self-esteem?
What are your thoughts? I’m interested to hear any and all advice (preferably constructive lol).
Note: [i]Above i mentioned my ‘theory’ for these occurrences -
[ Because my body is in perpetual pain I have unconcsiously begun living more and more ‘in the mind’ over the years as opposed to ‘the body’. I distract myself using comedy, music, movies & books. Boredom hurts like hell, literally.
It was never my intention to follow this road so I see these occurrences the results of internal defense mechanisms to help deal with this like isolation from outside world and loss of self-esteem etc…
In many ways it could be likened to meditation, but instead happening unconcsiously over time rather than in a planned moment of deep concentration. ][/i]